tag:blogger.com,1999:blog-47442491672798977262024-02-08T02:50:47.014-08:00According to AllisonEveryday opinions on life and living from a 46 year old WELL EDUCATED self chosen housewife, who has been living with Ulcerative Colitis (but without a colon) for many years, has survived more surgeries and medicines than seen on Grey's Anatomy, has survived brain surgery, is raising children in the middle of competitive Jewish suburbia who and has a keen sense of humor as well as survival about the whole thing.According to Allisonhttp://www.blogger.com/profile/10712855870699396851noreply@blogger.comBlogger43125tag:blogger.com,1999:blog-4744249167279897726.post-63233103042840805182012-02-02T11:38:00.000-08:002012-02-02T11:38:23.194-08:00wow, almost 2 months, almost a new personI look back and I see I haven't posted for almost 2 months. These days, that's like a life time. I no sooner posted that I was having difficulties with my own pouch, with my own intestines, when I got a call from St. Louis that my daughter was really not feeling well in school. She too suffers from UC. She was having horrible pain, chills, fever, and couldn't stand up straight. Yet it was the beginning of finals and she didn't want to take time away from studying to rest. She didn't have time not to go to the studio (she an art major), to go to the health center. But it got worse. And worse.. I finally convinced her to go to the emergency room--I would at least know if she was obstructed, or impacted, and she could at least be seen by someone trained in IBD. But no such luck. No scans, no xrays, not even an invasive physical exam (she's 19 and had this disease since she was 9, she knew what to expect). They sent her home with pain killers, but no treatment. This wasn't a small town no-nothing hospital. it was a teaching hospital in a major city.<br />
I did what any mother with the means, the desire, and the fire to do so would do....I got on a plane.<br />
I rented a hotel room. I picked her up, brought her to the hotel room, got them to make scrambled eggs at 11 at night, and went to the drugstore to buy all the horrible remedies that I as a LONG TIME sufferer of Ulcerative colitis know what to use. Ulcerative Colitis does NOT always cause diarhea. SOMETIMES, it causes the opposite. In college, I used to go weeks at a time without going to the bathroom. This continued most of my adult life until finally all I did was bleed. As I've mentioned before, when I was 34 my colon was completely removed because of all this bleeding.<br />
My daughter knows this.<br />
She went to the hospital looking for help.<br />
they did nothing.<br />
The health services at her school the next day were amazing. they did the necessary bloods, got in touch with her Dr. at home, followed whatever the Dr. at home wanted, and made necessary lab and Dr. appointments. When we got the the Dr. the next day, it was like a scene out of 'Terms of Endearment" with Shirley McClaine. They attempted to have her seen by a physicians asst. I stood in the middle of a large reception area, with my/her Dr. from home on the other end of the cell phone, and asked, LOUDLY, who was Dr. SOandSO. when someone pointed him out, I said rather loudly, I flew here from NY because your hospital couldn't be bothered to properly take care of my daughter, I'm not leaving until Dr. so and so gets on the phone and speaks and sees my daughter and HELPS HER. It was exactly the type of moment that would have made me cringe had it been my mother and myself, although, I do remember when I had one of my big surgeries,as an adult, and I didn't like one of the private nurses, and I didn't tell my kind, sweet, husband----I told my mother, and let HER handle it. Like it or not, there are DEFINITELY times we channel our mothers.<br />
We were able to get my daughter through her finals, and able to go away for the break as a family, and then we were busy with the flourish of preparations of packing my daughter off to Europe for a semester. Life is VERY busy sometimes.<br />
While all this has been going on, I've had 2 more of those awful pouchoscopies, (one following an ER visit). The Drs. are discussing more surgery--which I REALLY DO NOT WANT TO DO. Not fun. Lots of pain.<br />
I've been researching colleges for my son. ALSO Not fun---especially when we live in a world that relies more and more on one standard; WHY DOES HE NEED PHYSICS? Or PRECALCULUS??? I never took Chemistry! I use credit cards just fine!<br />
Someone recently asked me what I will do when both children are gone.<br />
I will be more than qualified to run a corporation, I just haven't been paid a salary for all my training and experience.According to Allisonhttp://www.blogger.com/profile/10712855870699396851noreply@blogger.com0tag:blogger.com,1999:blog-4744249167279897726.post-30987471358434138662011-12-06T12:51:00.000-08:002011-12-06T12:51:52.214-08:00Better way to spend the day<a href="http://blog.americanamanhasset.com/post/13830402692">Americana Manhasset</a><div><br /></div><div>I would soooo much rather spend the day here, in this beautiful setting for a Chanel opening in Paris, than in my kitchen cleaning out cabinets and drawers, and sorting through the thousands of catalogues that seem to multiply by the hour!!!!!!</div><div><br /></div><div>All day today I kept thinking to myself that there are so many people that must view my profile on facebook and on my blog and because I don't have a business title, and don't 'earn a salary" assume I don't "work".</div><div><br /></div><div>For those of you who think the women and men of today are more enlightened, think again. For many, including my children, I am ALWAYS supposed to be available to chat, or BBM, or TEXT. To them, I am always on vacation, can always run errands, and don't add anything to the household. </div><div>While it is true that I am lucky enough to have household help for the major cleaning, REAL clean, only happens when you do it yourself. NO ONE, can toss your garbage but you. NO ONE can organize your stuff (or should) but you. I'm STILL trying to come to terms with the whirlwind that I called my daughter during Thanksgiving break. Her room was sort of picked up, spun around, and dropped.</div><div><br /></div><div>Boy would I rather be sitting at the Chanel show.</div>According to Allisonhttp://www.blogger.com/profile/10712855870699396851noreply@blogger.com0tag:blogger.com,1999:blog-4744249167279897726.post-31089635005827367842011-12-01T13:00:00.000-08:002011-12-01T13:00:43.565-08:00Two Lesbians Raised A Baby And This Is What They Got<a href="http://bit.ly/tglEcr">Two Lesbians Raised A Baby And This Is What They Got</a><div><br /></div><div>Ok, so, sometimes, my SMITH COLLEGE education comes back to haunt me and I have to lecture a little bit. I love this video. I love everything about it. </div><div>To all those who are opposed to gay marriage,</div><div>To all those who are opposed to gay couples raising children,</div><div>ARE YoU KIDDING?</div><div><br /></div><div>Who seems like a more productive member of society, him, or half the kids raised in single parent homes where no one is home all day to supervise </div><div>or help with homework or keep everyone safe from drugs?</div><div>Does he seem like he was raised with good values?</div><div>Does he seem 'whimpy'? Effeminate? </div><div>Some food for thought, Hmmm?</div><div><br /></div><div><br /></div>According to Allisonhttp://www.blogger.com/profile/10712855870699396851noreply@blogger.com0tag:blogger.com,1999:blog-4744249167279897726.post-75037608663433479232011-11-13T15:40:00.001-08:002011-11-13T16:23:23.137-08:00UGH Another POUCHOSCOPYI am having a POUCHOSCOPY tomorrow. For those of you who do not know what that means, it is the same thing as a colonoscopy, except without the colon. I don't have one. Mine was removed 11 1/2 years ago and replaced with something called a 'J-POUCH'. A j-pouch is built out of one's small intestine being cut, looped up, re-sewn, and pulled down and attached to where the rectum and anus where, so the person maintains normal bodily functions. Basically, foods just skips the step in the digestive process that takes place in the colon (large intestine). The j-pouch eventually learns to do SOME or MOST of the functions of a colon, but never really all. Nevertheless, for some people, like myself, this is (or was at the time), the only known "cure" for Ulcerative Colitis.<br />
But I have problems with mine. I've had a lot of problems with mine. In the beginning I used to get 'Pouch-itis" ALOT. That comes with fever, chills, severe diarrhea, and for me, hospitalization and IV medications. When that finally stopped I had to deal with adhesions. Adhesions is/are scar tissue that like to grow and wrap itself around the organs like vines. It is especially prevalent in the abdomen. Lucky me, I am REALLY REALLY prone to adhesions, and the thing is, they like to wrap around the delicate little pathways that lead in and out of my pouch and BLOCK everything. My surgeon (who I LOVE), has done 7 of my 8 follow up surgeries to deal with these suckers. Actually, the second surgery was really because he had left 1 centimeter of colon to help with muscle function (yup, the sphincter muscle), but that got soooo infected that it was leaning on a nerve in my lower back and I could barely walk without pain. Kegel exercises would have to do!<br />
Anyway, I seem to be having one of those adhesions building up; or should I say tightening up. Last time this happened the surgeon went in and 'stretched' from the inside out to open the passageway and buy me more time. My surgeon and my gastroenterologist have this nasty habit of 'scoping' me in their offices without anesthetic. People make fun of me because I take car service into the city to my appointment if my husband isn't able to go with me, but I KNOW. I don't have friends go, because the waiting room process can be ENDLESS, only to the find out that I'm going to be scoped. SO, I go with Xanax, or some other such substance with me, because they aren't allowed to dispense when in their offices. 2 weeks ago, I was in a lot of pain, so she saw me first thing in the morning. STUPID ME. My husband was away, and I drove myself---and YUP, I was scoped. So I DIDN"T TAKE ANYTHING. This wasn't the first time, but still not pleasant. Actually, it was quite painful when she saw that the pouch was fine, and the problem was mechanical and she tried to get to it to open it. After, she prescribed medication to help the digestive process, again to put off any further procedures. Yay. This would now be 3 more pills a day to go with my already 10-12 pills a day in order to not have headaches, and not have a stomach ache while not having headaches. I had to get all sorts of clearances to add another pill to the mix, (achem Heath Ledger), I stayed home for a day to see how this would effect my already diminished cognitive capabilities (due to medication). <br />
Well the pills only worked sometimes. So I called to see if she could maybe do the same 'stretching' thing again---BUT WITH ME IN LA LA LAND. I swore to my son that this is NOT general anesthesia---10 times is enough. So YES, tomorrow I will be in LA LA Land. Pretty deep too since it will be more of a procedure than an exploration. Unlike the rest of you-- I HAVE NO PREP ;) I guess that's a perk. I'm hoping tomorrow is successful. I haven't had abdominal surgery since March 23, 2008. My son is a junior in high school and I have no time for recovery. I spent ALL of my 30s in and out of the hospital. I spent the beginning of my 40s doing the same. NO MORE.<br />
NAMASTE.According to Allisonhttp://www.blogger.com/profile/10712855870699396851noreply@blogger.com1tag:blogger.com,1999:blog-4744249167279897726.post-88777379479484782372011-11-08T09:33:00.000-08:002011-11-08T09:33:21.909-08:00According to Allison: FOR THE LOVE OF A CHILD<a href="http://allisonsvoice.blogspot.com/2011/11/for-love-of-child.html?spref=bl">According to Allison: FOR THE LOVE OF A CHILD</a>: Yesterday was a horrible day. I witnessed something that I, who I believe can and have survived almost everything, could not. Yesterday, I...According to Allisonhttp://www.blogger.com/profile/10712855870699396851noreply@blogger.com0tag:blogger.com,1999:blog-4744249167279897726.post-52370658919743417892011-11-08T09:25:00.000-08:002011-11-08T09:25:21.815-08:00FOR THE LOVE OF A CHILDYesterday was a horrible day. I witnessed something that I, who I believe can and have survived almost everything, could not.<br />
Yesterday, I was present for the funeral of a 19 year old girl. A healthy 19 year old girl; not that it would have been any better I guess had she not been healthy, but I would have been able to rationalize and/or prepare more. I had watched this child (I believe i am allowed to say child because my daughter is the same age), grow up. I saw her at holidays in temple, singing in the youth choir, doing various presentations with the hebrew school and later in the Hebrew high school, and of course, always in the marching band at school. The particular year in Hebrew school in which she and my daughter were a part, more than 13 kids had remained a part of the program. It was a part of who they were. They might not have all been close friends and might not have "hung out" together, but they were definitely a group, and she will definitely be missed in years to come.<br />
So yesterday, I went to the funeral, because, she was ANYONE'S CHILD. And I watched a Grandmother give a eulogy. I don't think that its natural. I've watched grandchildren numerous times stand up to talk about what they have learned from their grandparents. But this woman stood up and showed the sign language that her granddaughter made her learn.<br />
I watched as sisters stood up and read a gut wrenching poem about their sister, as friends and friend's parents got up to tell sweet and funny anecdotes about their lost friends, and then, I watched something I hope to never have to do. I watched as a mother and father bravely stood up, to talk about their love for their child, their pride in their child, their sorrow for their loss, but their happiness for: all they were able to share with her, experience with her, provide for her, encourage for her. Her dad talked about scuba diving with her and hiking and being on vacations together. Her mom talked about her community service trips, and how proud she was to help and watch her grow into an independent REAL and GROUNDED young woman.<br />
When I left I thought, "Wow". All I wanted to do was wrap my arms around my children and tuck them in their beds and keep them safe. But I also thought about the trips we've taken, our snorkeling with sea turtles, eating giant ice cream sundaes at Disney, sitting on the floor of hotel rooms in the rain happily playing board games and eating chips, laying in bed all together to watch movies when tired on vacation, hiking in Wyoming, and even just sitting in our backyard together. We've created memories together. We've put in time and energy as parents and as a family.<br />
The young woman's parents said that she was taken too soon, but she was taken happy, doing what she wanted, where she wanted. Our job as parents is and should be to enjoy our children, to help our children, to encourage our children, and to root for our children. They only get one childhood. It goes fast.According to Allisonhttp://www.blogger.com/profile/10712855870699396851noreply@blogger.com0tag:blogger.com,1999:blog-4744249167279897726.post-74888888002974627762011-10-30T20:24:00.000-07:002011-10-30T20:24:23.329-07:00According to Allison: freedom of speech/freedom of the press<a href="http://allisonsvoice.blogspot.com/2011/10/freedom-of-speechfreedom-of-press.html?spref=bl">According to Allison: freedom of speech/freedom of the press</a>: Today was really confusing. I woke up in a really relaxed, good mood. And I wasn't in any pain. For ME that's a big deal. I mean, it's bee...According to Allisonhttp://www.blogger.com/profile/10712855870699396851noreply@blogger.com0tag:blogger.com,1999:blog-4744249167279897726.post-49019192877938189062011-10-30T20:19:00.000-07:002011-10-30T20:19:58.363-07:00freedom of speech/freedom of the pressToday was really confusing. I woke up in a really relaxed, good mood. And I wasn't in any pain. For ME that's a big deal. I mean, it's been raining. It's been snowing. I had half a glass of wine yesterday (in addition to my regular dosages of pain meds, adavan, anti seizures, digestion meds and heart meds). That was a a risk. But I did NOT have a headache this morning. I had had a really fun day in the city with my hubby after an equally fun night at a costume party with friends, where we watched the hometown team of one of my guests win the world series. My daughter is in college in that city so they were texting all night.<br />
My "high" or balloon was shot down by a friend who told me (more in tone than in words) that the party couldn't have been that much fun because there were less people than in fewer years.<br />
Well, I had fun. My guests had fun. The food was really, really good. The music was really good and we could get on the dance floor we wanted. Nobody was offensive. Nobody was overly drunk or unseemly. (I must be getting old by the way, that I notice and/or comment on such things)<br />
I am not a 'verbally' confrontative person (unless it has to do with one of my kids---then WATCH OUT). When we were in high school, or at least where I went to high school, we wrote notes to one another. Sometimes really long ones. We passed them in the hall in the morning or at lunch or whenever. We vented then. Maybe that's why I'm good at writing. But verbally? No. not me. I'm an emotional person, and when face to face, my emotions get in the way of coherency. SO I vented on Facebook, BUT, I kept it anonymous. The only comment made were by people from my hometown and perhaps 1 or 2 people around here. Then the bully campaign began, so I removed the post as I was told I was humiliating someone. I NEVER named names, but I was being a bully. Forget freedom of speech or freedom of the press or anything like that.<br />
When the word Humiliation was used, I was reminded of Cinderella and the glass slipper. you know the old saying " if the shoe fits, wear it",? How can one feel humiliated unless one recognizes oneself?<br />
Do you think people realize what they say, and they KNOW instinctively who they think they can get away with it with?<br />
I wonder if, like a pheremone, I give off some kind of odor that encourages dumping on me. Its ok for people to say whatever they want, but since writing is my only way of being heard for defense, for being actually heard, I'm NOT supposed to defend. Somehow I think this is wrong.<br />
I think I'll keep writing.According to Allisonhttp://www.blogger.com/profile/10712855870699396851noreply@blogger.com0tag:blogger.com,1999:blog-4744249167279897726.post-45218295498319494232011-10-07T11:41:00.000-07:002011-10-07T11:41:02.089-07:00I am totally starting to understand why every year it gets easier to ORDER more of the food for the Jewish holidays. It's not that I don't like to cook, I LOVE to cook. I LOVE when some thing that I have created tastes delicious. I LOVE when my husband and children come in the door and ay that something smells really good.<br />
BUT, today I was faced with a VERY real truth. I am getting OLD, and MY EYES are going. TWICE I MIS-READ measurements and had to start over. Maybe I need to wear my reading glasses more. Maybe I need more sleep (definitely need more sleep), maybe its from medication. All I know, is that simple dishes and breads and cakes that used to take 10 minutes to assemble now take an hour. MAYBE its my children or other family BBMING - texting me to ask/tell me their latest crises because NO ONE JUST CALLS ANYMORE. Who knows.<br />
MAYBE its having to think about haircuts and carpools and tutors, and tests, and homework WHILE I'm reading the measurements and getting the texts.<br />
MAYBE its the door bell ringing and the dog barking while i'm thinking and cooking and measuring etc.<br />
I don't know, but I gotta go pick up from school and rush back to take a cake out before we go for a haircut and then I GET TO shower and finish cooking before temple.<br />
Have an easy Fast everyone.<br />
For those of you who don't celebrate/observe, hug your mother even when you find raisins in your chicken soup and carrots in your dessert.According to Allisonhttp://www.blogger.com/profile/10712855870699396851noreply@blogger.com1tag:blogger.com,1999:blog-4744249167279897726.post-90270074940536322282011-09-20T19:35:00.000-07:002011-09-20T19:35:32.935-07:00support Group leader--me?CCFA called and wanted to know if I would come to fill in as one of the support group leaders this week. Now, this is a position I held for about 3 years, and I was fairly religious about going. Then I had my craniotomy, and it became more and more difficult to go out on week nights, and be supportive of people just starting out in the world of Crohn's Disease and Ulcerative Colitis.<br />
Ulcerative Colitis, and Crohn's has almost always been a part of my life, so to me, they are just chronic illnesses that have to be dealt with.<br />
HOWEVER, my head hurting all the time is a different story to me. when i stepped down as a leader, i explained that it was not that i didn't want to be supportive, I just could commit to always being somewhere and having people depend on me, because when my head starts to hurt---which it does often and intensely, I can't be supportive of others. That's just how it is.<br />
I would rather have a stomach ache than headache. Not everyone would say that, but I have mastered digestive issues. I spent years driving my kids to school or playing golf or running errands, knowing where the nearest bathroom was, wearing pads or depends, or not eating purposely before going out. Did you know codeine slows your system? I would take a codeine before going to a party or bar mitzvah and purposely not eat so that I could have fun.<br />
I don't drink anymore. and I LOVE WINE. But a headache isn't worth it. so I take an adavan or xanax in the car on the way out and I am relaxed as you will be with your drink, with a lot less calories!<br />
anyway, I've had a pretty HORRIBLE headache this week, and been VERY dizzy, so I'm not going to be supportive of anyone but ME, and MY KIDS, and HUSBAND.<br />
But you have a good week!According to Allisonhttp://www.blogger.com/profile/10712855870699396851noreply@blogger.com0tag:blogger.com,1999:blog-4744249167279897726.post-46603158001802003242011-09-14T08:34:00.001-07:002011-09-14T08:34:53.457-07:00Should I ALWAYS be positive?It's been a long time since I've written anything. Not because I had nothing to say, but perhaps because I had too much. Reading through my posts, and the statistics on who reads them, the decision of whether to always be 'uplifting' and 'positive' or would allowing my 'self-pity musings' to flow through be beneficial to others, or just cathartic. So I've decided it's a bit of both, and if someone doesn't want to read -----click off!<br />
I've had a headache since we were in Jackson Hole! The neurologist said places with that kind of altitude are not great for headache sufferers. You know what I think? The amount of fun and laughter and memories that I shared with my husband and children made it worth it. And I'd do it again. I didn't give up living when they took out my colon, and I'm not going to now. Yes, I have to take extra drugs, and rest more than others, but we laughed, and had lots of fun!<br />
I also took my daughter back to college and set up her room. Many questioned WHY I NEEDED to do such a thing. The answer is very simple; it made her happy. It was comforting to her to have her dad and I BOTH go and fix and move and put things together 'just so'. Her room required creativity to make it feel special, and that is my specialty ;). Once you are the mom, that's your job for life!According to Allisonhttp://www.blogger.com/profile/10712855870699396851noreply@blogger.com2tag:blogger.com,1999:blog-4744249167279897726.post-90006902738884245042011-08-20T10:34:00.000-07:002011-08-20T10:34:51.576-07:00Family time is imorant, no matter how oldI have always been a big proponent of making time at the end of the summer for my husband and my two kids and I to spend a few days alone together before the hustle and bustle of school began. Evan when my daughte waas skating competitvely and this was frowned upon as she had just been away at camp, I always reasoned that a long weekend wouldn't make or break her.<br />
We had years of playing on the beach, the 4 of us, building sand castles, or wathiching my son and my husband killing thimselves learning how to skimboard (OOOOO YOU Need TO WAX THE BOTTOM????), we had a year when it raind and the 4 of us sat of the floor of a rented beach front room playing rummycube and eating pretzels.<br />
4-5 days, or 2-3. It really doesn't matter. this alone time, most of it, were meals and days WITHOUT cell phones we decided, were enough to remind us of the fact that we are a family first, and then whatever to whomever. We have always had a speciaal bond. My kids (no longer children) have always had a good relationship. This time away alone, just reminds them of who they are, without all the distractions of the outside world. Even if someone can't afford to "go away", which we reallly couldn't for a long time, a weekend at any hotel nearby with an on site swimming pool and restaurant would do for a night or two. Before schhool, and teams, and friends, and pressure. It's a good time to remind your high school kids of the fact that you LOVE THEM and THEY CAN CALL YOU NO MATTER WHAT. Your college kids can be reminded of this too!<br />
Your kids are only single and YOURS for a very short time. TAKE ADVANTAGE. you will remember this and so will they.According to Allisonhttp://www.blogger.com/profile/10712855870699396851noreply@blogger.com0tag:blogger.com,1999:blog-4744249167279897726.post-10634601517885359222011-08-11T15:15:00.000-07:002011-08-11T15:15:28.601-07:00squeeze bottle ketchup invented by womanI have come to the conclusion that squeeze bottle ketchups were invented by women. My trainer, who is a guy, didn't get this thought process. My Physical therapist, who is a man, did not follow this thought process. My yoga instructor, a woman, TOTALLY understood.<br />
Think about it ladies, and men who are married to ladies, or who have mothers and grandmother who are "north of 40". Think about the first time you were out in public and you needed to pour ketchup out of the bottle for yourself or your child etc, and YOU FELT THE LOWER PART OF YOUR UPPER ARM the part that USED TO BE a tricep SWING BACK AND FORTH. You could almost HEAR it making a loud LOOK AT ME noise like Jan and her boyfriend running to each other in slow motion on The Brady Bunch. Everyone could SEE!!!!! SO either, you would NEVER be able to eat french fries with ketchup in public again, OR, an alternative needed to be found.<br />
VOILA!!!!!! the Squeeze bottle was born!According to Allisonhttp://www.blogger.com/profile/10712855870699396851noreply@blogger.com0tag:blogger.com,1999:blog-4744249167279897726.post-77246024510535703172011-08-08T19:12:00.000-07:002011-08-08T19:12:28.275-07:00Sadness and Depression 2 separate thingsI had a conversation today with someone who stated that she thought she might be depressed, but felt guilty because she has 'no reason' to be. She lives in a nice home, has no financial worries, she's healthy and her children are healthy. Yet, she has many days when she does not feel like getting out of bed, or doing anything and was confused.<br />
I explained, there is a difference between feeling sad, and being depressed. She might not have a reason to 'be sad', but 'depression' is a chemical imbalance, and cannot always be helped, or recognized, and very often runs in families.<br />
If you find that you are no longer interested in your normal activities, or don't want to wake up, or just want to sleep all day---and don't feel like there is a specific "reason" to be this way, --perhaps you should go and speak with someone and give your self a break. Asking for help is not a sign of weakness--it is just the opposite.According to Allisonhttp://www.blogger.com/profile/10712855870699396851noreply@blogger.com0tag:blogger.com,1999:blog-4744249167279897726.post-72143808777431293692011-08-07T14:12:00.000-07:002011-08-07T14:12:12.177-07:00susccess! POSITIVE THINKING!Well, it was great! Perseverance pays off! I will continue to believe that while positive thinking might not totally CURE you of serious ailments, A GREAT ATTITUDE, and a DESIRE to LIVE A FULL LIFE will. It helps that I have the support of an amazing husband and friends, and unbelievable children. But truly, the ONLY ONE who can make your life better....is YOU.According to Allisonhttp://www.blogger.com/profile/10712855870699396851noreply@blogger.com0tag:blogger.com,1999:blog-4744249167279897726.post-12527955697399502692011-08-06T07:11:00.000-07:002011-08-06T07:11:28.775-07:00According to Allison: perserverence<a href="http://allisonsvoice.blogspot.com/2011/08/perserverence.html?spref=bl">According to Allison: perserverence</a>: "I am going into the city tonight to stay in a chic hotel with my husband. We planned this at the beginning of the summer when one of those ..."According to Allisonhttp://www.blogger.com/profile/10712855870699396851noreply@blogger.com0tag:blogger.com,1999:blog-4744249167279897726.post-70673783662540521052011-08-06T07:09:00.000-07:002011-08-06T07:09:25.449-07:00perserverenceI am going into the city tonight to stay in a chic hotel with my husband. We planned this at the beginning of the summer when one of those discount sights online was selling nights at this hotel at major discounted rates. He suggested it, which he often does, one of the many things I love. Like a mini vacation within our funky city in an area that is a lot of fun no matter what time of day.<br />
Of course, I have been dealing with a significantly painful ovarian cyst all week. I figured, no problem, I'll take some pain meds, and besides, after a few more days in my cycle its GOT to get better, right? (even though the Dr.s are talking about surgery and the thought of my 10th laporoscopic procedure on my belly does not a happy girl make). Anyway, me, being me, I pay as little attention to pain as possible. Last night at dinner, My hubby mentioned it might be fun to go to a club tonight too (even though it is the middle of the summer and the crowd will be, um, different then it would be otherwise and let's face facts--we are not in our 20s). I sent a text to a high school friend who I've re=connected with in a mutually nice way, who I guess you can say 'knows people". Low and behold we are going to a club tonight. I get to feel like the big MACHA,and hubby gets to pay the bill ;). <br />
Well, I woke up with fierce migraine. Of course. What else is new. It would seem for most of my life, whenever I have had fun things planned, I haven't felt well. HOWEVER, it doesn't stop me. As I used to tell the women in the CCFA support group I led, if you can figure out a way to live with the pain, to function thru the pain, so that you have short bursts of happiness, then do it. It MAY be that I will take a nap in between dinner and the club--I'm getting old! OR, I might not have to! I probably will bring LOTS of meds to help me feel better in the wee hours into tomorrow and all day tomorrow. BUT, what I AM NOT WILLING to do, IS TO SIT AROUND COMPLAINING WOE IS ME.<br />
LIFE IS FOR LIVING. I might have to do it more slowly than other women my age. I might have to do it with more medication, or more alternative thinking and methods than women my age, but I will do it.According to Allisonhttp://www.blogger.com/profile/10712855870699396851noreply@blogger.com0tag:blogger.com,1999:blog-4744249167279897726.post-83224297462197719102011-08-02T20:31:00.000-07:002011-08-02T20:31:05.142-07:00Some quotes on familyG-d could not be everywhere, and therefore he made mothers........a Jewish proverb.<br />
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Family isn't about whose blood you have. It's about who you care about....Trey Parker and Pat Stone<br />
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One of the Greatest things a father can do for his children is to love their mother....Howard Hunter.According to Allisonhttp://www.blogger.com/profile/10712855870699396851noreply@blogger.com0tag:blogger.com,1999:blog-4744249167279897726.post-11995637612783725892011-08-01T14:27:00.000-07:002011-08-01T14:27:43.724-07:00I've been thinking about family a lot for the past few days. Maybe this is because my kids are both away and I have extra time. Or maybe it's because my kids are getting older and my time of 'being their universe' is slowly coming to an end. Who knows, maybe it's hormonal ;). Whatever the case I find it interesting and comforting to know that I am NOT the only one, male or female, who feels this way.<br />
While out for dinner with friends the other night the subject of me being a bit sad about the changes and directions that certain family relationships have undergone. I should not be surprised by this change-----I happen to come from a particularly dysfunctional background (probably why I am venting to strangers).<br />
Nevertheless, I was surprised to hear that other people who may or may not have messed up or 'latch-key' childhoods were finally letting go of the pretense that they did. They too had family members that were estranged. <br />
I have learned that FRIENDS ARE THE FAMILY YOU CHOOSE FOR YOURSELF. I have a sister-in-law who is like my little sister. This didn't happen overnight but it happened. I have an EX sister-in-law who I only speak to about once every 6 months, but our children are related and share a bloodline and we are 2 intelligent women who wish each other well . I have wonderful fabulous friends who I wouldn't trade for the world! These are my family. I chose them. I 'picked them for my team'.<br />
Everyone should feel like they are on a winning team.According to Allisonhttp://www.blogger.com/profile/10712855870699396851noreply@blogger.com0tag:blogger.com,1999:blog-4744249167279897726.post-31798861647849889802011-07-30T10:16:00.000-07:002011-07-30T10:16:37.929-07:00finding happiness and peace, and managing pain<div class="uiAttachmentTitle" data-ft="{"type":11}" style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 11px; line-height: 14px; word-wrap: break-word;"><strong><span><a href="http://abcnews.go.com/US/meditation-wiring-brain-happiness/story?id=14180253&fb_ref=.TjJa9lR_R6I.like&fb_source=home_oneline" rel="nofollow" style="color: #3b5998; cursor: pointer; text-decoration: none;" target="_blank">Meditation: Re-Wiring Your Brain for Happiness</a></span></strong></div><span class="Apple-style-span" style="color: grey; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 11px; line-height: 14px;"><span class="caption">abcnews.go.com</span></span><br />
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<span class="Apple-style-span" style="color: grey; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 11px; line-height: 14px;"><span class="caption">Any alternative to taking pain meds---of which I've taken ALL!!!!!!!--EXCEPT POT which NY refuses to legalize medicinally even though it would PROBABLY help the economy TREMENDOUSLY, is welcome in my book. Anyone who says they don't hae time to meditate, must be dirty and smelly and sleep deprived because, it CAN be done ANYWHERE!</span></span>According to Allisonhttp://www.blogger.com/profile/10712855870699396851noreply@blogger.com0tag:blogger.com,1999:blog-4744249167279897726.post-44429876131214183572011-07-29T05:47:00.000-07:002011-07-29T05:47:16.674-07:00vote! they really are the best! CCFA people!!!<div class="uiAttachmentTitle" data-ft="{"type":11}" style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 11px; line-height: 14px; word-wrap: break-word;"><strong><span><a href="http://www.ivillage.com/stuff-we-love-styles-well-wear-forever/8-b-356307#356292" rel="nofollow" style="color: #3b5998; cursor: pointer; text-decoration: none;" target="_blank">Stuff We Love: Styles We'll Wear Forever - iVillag</a>e</span></strong></div><span class="Apple-style-span" style="color: grey; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 11px; line-height: 14px;"><span class="caption"><a href="http://www.ivillage.com/" rel="nofollow" style="color: #3b5998; cursor: pointer; text-decoration: none;" target="_blank">www.ivillage.co</a>m</span></span><br />
<span class="Apple-style-span" style="color: grey; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 11px; line-height: 14px;"><span class="caption">CCFA Ladies!!!!! When you feel like feeling thinner, but need to hold the bloat in......THESE ARE THE BEST FOR GOING OUT!!!!!!!!!!</span></span>According to Allisonhttp://www.blogger.com/profile/10712855870699396851noreply@blogger.com0tag:blogger.com,1999:blog-4744249167279897726.post-65128786637659119342011-07-27T20:05:00.000-07:002011-07-27T20:05:56.381-07:00New Item for CCFA People!!!!Alright, so here is the truth, when I first started out to write this blog, my intention was to not only be witty and sarcastic (my general outlook I guess), but to also be helpful---especially to those who suffer from Crohn's Disease and Ulcerative Colitis. I am not a Dr., but I have suffered for most of my adult life--most of my teens too. I have been on more medications than I can count, EXCEPT for Remicade, Humira, and Cimzia, and the newest Mesalamines.<br />
11 years ago, when I was 34, my colon was completely removed. Yup, the whole thing. I was "lucky" (I say that lightly), because I didn't need an "ostomy bag". My whole procedure was done in one step and I was given a J-Pouch. I have since had 8-9 follow up surgeries, mostly dealing with scar tissue and blockages, but for the most part I've slowly gotten healthier.<br />
I still, however, deal with occasional "bathroom issues". I also have a daughter with Ulcerative Colitis and my mom has Crohn's. Imagine how happy I was today to come across a product while standing at Greenvale Pharmacy, called "Poopsie Daisy". This product is meant to be sprayed into the toilet PRIOR to having a bowel movement to dispel the smell. (if you are blushing, this blog is not for you--I've had this disease and my family has had this disease forever. Everyone on the North shore of Long Island calls me when their kids have poop and/or tummy trouble--that's just the way it is).<br />
Anyway--what a great product to carry with you, or put in your guest bathrooms, or office bathrooms. THE WILD TULIP in Roslyn used to carry a similar item called POOPOURIE, But once they closed so did access to this product. That's why I'm so excited by this.<br />
People who do not have this disease may not be aware how often people with IBD (IRRITABLE BOWEL DISEASE) absolutely DREAD having to go to the bathroom in a public place or, Gd forbid, in someones house. This, hopefully, will help!According to Allisonhttp://www.blogger.com/profile/10712855870699396851noreply@blogger.com0tag:blogger.com,1999:blog-4744249167279897726.post-77691672978458783392011-07-22T11:19:00.000-07:002011-07-22T11:19:28.724-07:00I really love this group!http://www.ourstage.com/t/ASNMFBDZNMNV Way to go PhaseONE COMMUNICATIONS!!!!!!<br />
Good Catch!According to Allisonhttp://www.blogger.com/profile/10712855870699396851noreply@blogger.com0tag:blogger.com,1999:blog-4744249167279897726.post-86687295516392165812011-07-21T13:42:00.000-07:002011-07-21T13:42:47.145-07:00black and Jewish--Boys from the South Shore--you watching?http://blogs.laweekly.com/westcoastsound/2011/07/black_and_jewish_black_and_yel.php-------a geat song!!! about time Jews get a return song! well done ladies!!!!!!<br />
Boys from the South Shore--you watching?According to Allisonhttp://www.blogger.com/profile/10712855870699396851noreply@blogger.com0tag:blogger.com,1999:blog-4744249167279897726.post-60653383265654408182011-07-18T12:26:00.000-07:002011-07-18T12:26:38.583-07:00jet lag stinksJet Lag stinks. I don't know how people travel all the time. My hubby travels all the time. Maybe that's why he's always so agreeable--he's too tired to argue!!!According to Allisonhttp://www.blogger.com/profile/10712855870699396851noreply@blogger.com0