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Sunday, November 13, 2011


I am having a POUCHOSCOPY tomorrow. For those of you who do not know what that means, it is the same thing as a colonoscopy, except without the colon. I don't have one. Mine was removed 11 1/2 years ago and replaced with something called a 'J-POUCH'. A j-pouch is built out of one's small intestine being cut, looped up, re-sewn, and pulled down and attached to where the rectum and anus where, so the person maintains normal bodily functions. Basically, foods just skips the step in the digestive process that takes place in the colon (large intestine). The j-pouch eventually learns to do SOME or MOST of the functions of a colon, but never really all. Nevertheless, for some people, like myself, this is (or was at the time), the only known "cure" for Ulcerative Colitis.
But I have problems with mine. I've had a lot of problems with mine. In the beginning I used to get 'Pouch-itis" ALOT. That comes with fever, chills, severe diarrhea, and for me, hospitalization and IV medications.  When that finally stopped I had to deal with adhesions. Adhesions is/are scar tissue that like to grow and wrap itself around the organs like vines. It is especially prevalent in the abdomen. Lucky me, I am REALLY REALLY prone to adhesions, and the thing is, they like to wrap around the delicate little pathways that lead in and out of my pouch and BLOCK everything. My surgeon (who I LOVE), has done 7 of my 8 follow up surgeries to deal with these suckers. Actually, the second surgery was really because he had left 1 centimeter of colon to help with muscle function (yup, the sphincter muscle), but that got soooo infected that it was leaning on a nerve in my lower back and I could barely walk without pain. Kegel exercises would have to do!
Anyway, I seem to be having one of those adhesions building up; or should I say tightening up. Last time this happened the surgeon went in and 'stretched' from the inside out to open the passageway and buy me more time. My surgeon and my gastroenterologist have this nasty habit of 'scoping' me in their offices without anesthetic. People make fun of me because I take car service into the city to my appointment if my husband isn't able to go with me, but I KNOW. I don't have friends go, because the waiting room process can be ENDLESS, only to the find out that I'm going to be scoped. SO, I go with Xanax, or some other such substance with me, because they aren't allowed to dispense when in their offices. 2 weeks ago, I was in a lot of pain, so she saw me first thing in the morning. STUPID ME. My husband was away, and I drove myself---and YUP, I was scoped. So I DIDN"T TAKE ANYTHING. This wasn't the first time, but still not pleasant. Actually, it was quite painful when she saw that the pouch was fine, and the problem was mechanical and she tried to get to it to open it.  After, she prescribed medication to help the digestive process, again to put off any further procedures. Yay.  This would now be 3 more pills a day to go with my already 10-12 pills a day in order to not have headaches, and not have a stomach ache while not having headaches.  I had to get all sorts of clearances to add another pill to the mix, (achem Heath Ledger), I stayed home for a day to see how this would effect my already diminished cognitive capabilities (due to medication).
Well the pills only worked sometimes. So I called to see if she could maybe do the same 'stretching' thing again---BUT WITH ME IN LA LA LAND. I swore to my son that this is NOT general anesthesia---10 times is enough. So YES, tomorrow I will be in LA LA Land. Pretty deep too since it will be more of a procedure than an exploration.  Unlike the rest of you-- I HAVE NO PREP ;)  I guess that's a perk.      I'm hoping tomorrow is successful. I haven't had abdominal surgery since March 23, 2008. My son is a junior in high school and I have no time for recovery. I spent ALL of my 30s in and out of the hospital. I spent the beginning of my 40s doing the same.  NO MORE.

1 comment:

  1. Good luck. I'm around if your son needs Ia ride...