CCFA called and wanted to know if I would come to fill in as one of the support group leaders this week. Now, this is a position I held for about 3 years, and I was fairly religious about going. Then I had my craniotomy, and it became more and more difficult to go out on week nights, and be supportive of people just starting out in the world of Crohn's Disease and Ulcerative Colitis.
Ulcerative Colitis, and Crohn's has almost always been a part of my life, so to me, they are just chronic illnesses that have to be dealt with.
HOWEVER, my head hurting all the time is a different story to me. when i stepped down as a leader, i explained that it was not that i didn't want to be supportive, I just could commit to always being somewhere and having people depend on me, because when my head starts to hurt---which it does often and intensely, I can't be supportive of others. That's just how it is.
I would rather have a stomach ache than headache. Not everyone would say that, but I have mastered digestive issues. I spent years driving my kids to school or playing golf or running errands, knowing where the nearest bathroom was, wearing pads or depends, or not eating purposely before going out. Did you know codeine slows your system? I would take a codeine before going to a party or bar mitzvah and purposely not eat so that I could have fun.
I don't drink anymore. and I LOVE WINE. But a headache isn't worth it. so I take an adavan or xanax in the car on the way out and I am relaxed as you will be with your drink, with a lot less calories!
anyway, I've had a pretty HORRIBLE headache this week, and been VERY dizzy, so I'm not going to be supportive of anyone but ME, and MY KIDS, and HUSBAND.
But you have a good week!
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